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Cancer Registry

What is the Robert C. Rosenlof, MD, Cancer Registry?

The Cancer Registry is a system for maintaining data pertaining to cancer patients as well as those with certain blood disorders and select benign tumors.

The Cancer Registry at Good Samaritan Hospital was dedicated as the Robert C. Rosenlof, MD Tumor Registry in 1986 in honor of Dr. Rosenlof's vision and dedication to cancer patients and the cancer program at Good Samaritan. Dr. Rosenlof served as the first chairman of the cancer committee for six years and was instrumental in achieving the program's first American College of Surgeons Commission on Cancer accreditation in 1982.

Why do we have a Cancer Registry?

  • Nebraska State Law requires hospitals with more 50 cases per year to collect information on cancer for scientific studies and prevention programs. This information must be reported to the State Department of Health and Human Services.
  • The information collected, such as demographic and cancer-specific information, is used by the Nebraska Cancer Registry to develop a detailed statistical picture of how cancer affects Nebraskans, to investigate reports of cancer clusters in Nebraska communities, and to plan and evaluate efforts to reduce the burden of cancer in Nebraska. Without registries we would only know about persons who die from cancer, and much less information would be available for cancer prevention and control efforts.
  • The most current Nebraska cancer statistics are published in an annual report by the Nebraska Cancer Registry, which can be accessed on the Nebraska Health and Human Services System website
  • Data from the Good Samaritan Cancer Registry is also submitted annually to the National Cancer Data Base (NCDB), of the American College of Surgeons Commission on Cancer (CoC). This data submission is one of the requirements of all CoC approved cancer programs.
  • The NCDB is a nationwide, facility-based, oncology data set that captures approximately 75% of all newly diagnosed cancer cases in the US. The NCDB holds information on more than 15 million cases of reported cancer diagnoses.
  • The primary focus of the NCDB is to improve the quality of cancer care by providing CoC-approved cancer programs, physicians, cancer registrars, and others with the means to compare their management of cancer patients with the way patients are managed in other cancer programs around the country.
  • The Cancer Registry information can help local health care professionals plan our education and detection programs.

In all cases, patient confidentiality is strictly maintained.

Lifetime Follow-up

Lifetime follow-up is an important aspect of the Cancer Registry. A diagnosis of cancer requires that a patient be medically followed for life. Current patient follow-up serves as a reminder to physicians and patients to schedule regular clinical examinations and provides accurate survival information.

What is a Cancer Registrar?

Cancer Registrars are data management professionals who report cancer statistics for various healthcare agencies.

  • The Cancer Registrar captures a complete summary of the patient's disease from diagnosis through their lifetime. The abstract, or summary, provides an ongoing account of the cancer patient's history, diagnosis, treatment, and current status.
  • Cancer Registrars participate in cancer program, institution, and community benefit activities as part of the health care leadership team.
  • Cancer Registrars provide benchmarking services, monitor quality of care and clinical practice guidelines, assess patterns of care and referrals and monitor adverse outcomes including mortality and co-morbidity. 

How can you help the Cancer Registry?

  1. Schedule clinic appointments as often as your physician recommends.
  2. Inform the Cancer Registry of changes in address, physician, or marital status by calling (308) 865-7952 or 1-800-277-4306.
  3. Respond to letters from the Cancer Registry.

For further information about the Cancer Registry please contact our Cancer Center by calling (308) 865-7952 or 1-800-277-4306

Click here to View our Quality of Patient Care Reports.

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